Due to my sinus infection, I haven't snagged as much time on the computer lately. On the same day that my ES had his endoscopy/colonoscopy, and we received the good news that he doesn't have Crohn's, Coleman Larson underwent an MRI and they received the difficult news (with these precious twin four year old boys right in the room) that Coleman's cancer has spread. Both chemotherapy and the 3f8 treatments they were hoping to try, are no longer options. He is also displaying tremors and slurred speech. Today was quite an exhausting day for them, with more tests to try to determine the source of the tremors.
As Peggy put it:
"So a recap- Cman's day...one finger poke,one catscan, one port access, one infusion, one E.E.G., one omaya access, one bouncy brother trying his best to sit still and be supportive and entertaining for an almost ten hour day. TWO exhausted parents."
My heart is aching for this precious family. I cannot do anything to ease their anxiety, but I can pray and encourage everyone I know to lift them up in prayer. Please remember Caden, Coleman's twin brother, as well. He is watching this whole thing unfold and is extremely concerned about his brother.
As for our good news, we haven't been able to take any action on it yet. ES came to us in the middle of the night to say he felt really ill. We kept him home from school today and had to cancel an orthodontic appointment (it was a tightening, so we temporarily held off that pain).
With his nausea, we didn't feel good about starting the two week triple therapy (consisting of two strong antibiotics and a proton pump inhibitor). Plus, I have been trying to reach the doctor with questions about scheduling these medicines. It gets a bit complicated when the Prevacid is supposed to be taken on an empty stomach, and one of the antibiotics isn't supposed to be taken within six hours of an antacid or with calcium or any vitamin supplements. We are trying to determine a schedule for his meds, his vitamin and his probiotic.
Of course, our primary prayer for ES is that this doesn't prove to be an antibiotic resistant strain of H. Pylori. We are hoping that the two week course of heavy meds will eliminate the bacterial infection, allowing him enough time to strengthen his body for the coming wrestling season.
We have been extremely grateful for the prayers of family, friends back in DeKalb and those who stay connected with us through the internet. If we have been encouraged by the relatively small number of people praying for ES, think how encouraging the numerous prayers for Coleman help to strengthen and support his family. Take a moment to watch this video of their family, visit their carepage and say an extra prayer for Coleman and Team Larson, because they "neva div up!"
1 comment:
Thank you for sharing. It is so sad to see a little one go through such a terrible illness. I will be praying for his family as well.
Take care
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